How do I know I sound weird?

Even though Sammie has severe-profound levels of hearing loss:

She speaks well because of high powered hearing aid, speech, and 8 years of deaf education.

With her high powered hearing aid (and Jacob), she is hearing, at best, a moderate level hearing loss. Getting only 35% speech recognition. So she relies on lip reading and environmental cues.

The ear that was implanted, aided, presurgery, she only had 12% recognition.

Sammie cannot hear at all without her implant and hearing aid. She will most likely receive another implant by the end of this year if she decides she wants it.

I hope this helps those of you who are not deaf or hard of hearing to understand the differences in losses and how even a mild hearing loss can be very disorienting and difficult for people of all ages.

For a more in depth simulator, go to http://www.phonak.com/com/b2c/en/hearing/understanding_hearingloss/how_hearing_loss_sounds.html

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4 thoughts on “How do I know I sound weird?

  1. Thanks for sharing the link above. 🙂 It’s a good example. I’m glad that Sammie makes such a good progress with her new implant. If she receives another implant by the end of this year, she will like it for sure. I’ve waited eight years before I decided to get a second implant and it truly was the best decision I’ve ever made. Being bilateral is wonderful. It is easier to understand people talking a noisy environment now, and listening to music is great, everything sounds more voluminous.

  2. Thank you for sharing your story with us. It’s wonderful to see that Sammie is still the same bright child, if not happier, after this experience. My 5 year old daughter is a candidate for an implant. She has bilateral loss, but worse in her left ear, like Sammie.

    Would you mind telling me which gene mutation Sammie and Jake have? We took the Otochip test, and got no matches. My daughter’s loss has been progressive since she was 3.

    Sammie, we’re inspired by the journey that you are on!

    Jake, we’ll be praying for you on your big day!

    • Sammie and Jacob have Connexin 26 mutation. We are lucky to have found out what it was. A lot of people never find out what the cause is. They are identifying new genetic markers for hearing loss all the time.

      Please, let us know if you have any questions and how your daughter is doing!

      Jen Hicks

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